Digital resource aids individuals battling dementia with advice and support online
New DementiaNet Platform Launches to Support Dementia Care
This week marks the launch of DementiaNet, a groundbreaking web platform designed to offer support and resources for individuals living with dementia and their caregivers. The platform aims to become the go-to destination for managing life with dementia, addressing a pressing need as the number of people affected by dementia continues to rise.
According to the 2024 DementiaNet survey, an alarming 88% of respondents felt unhappy or unsatisfied with existing general dementia-related information. Recognizing this gap, DementiaNet offers a highly personalized and empowering approach, focusing on simplicity and clarity to minimize stress and overwhelm.
DementiaNet's features are designed to streamline care management, provide access to resources and information, and offer communication tools for caregivers and healthcare professionals. The platform includes a secure digital vault, downloadable planning tools, and a step-by-step dashboard to help manage tasks like care planning.
In addition, DementiaNet features an online forum to combat emotional and social isolation, a common experience for many people living with dementia and their caregivers. The platform also connects users with local dementia support activities through its built-in search tool.
DementiaNet was developed by Brian Schur and Hugh McGouran, who have personal experience with the dementia journey. Schur, whose mother-in-law was diagnosed with dementia in 2022, found the overwhelming information and practical tasks involved challenging to navigate. McGouran, chair of a dementia charity in the North east, highlights the difficulty of finding relevant and tailored information in the vast amount of online resources available.
DementiaNet was developed using lived experience and extensive research to fill a gap in user-friendly online support. The platform is designed to offer a more tailored experience, with accessibility tools catering to users with visual impairments, ADHD, and other needs.
The NHS estimates that 1 in 3 people will care for someone with dementia at some point in their lives, and the number of people living with dementia in the UK is expected to rise to 1.4 million by 2040. DementiaNet's mission is to support this growing community, offering improved care coordination, better information sharing, increased caregiver support, and enhanced quality of life for those with dementia.
The platform is currently under further development, and while specific details about its key features and benefits are not yet available, it is expected to offer optional paid features for the secure planner and document store, adapting to users' specific situations.
As DementiaNet continues to grow and develop, it promises to become a vital resource for the dementia community, offering a more personalized, user-friendly, and accessible online support experience.
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